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JNCI Journal of the National Cancer Institute 2004 96(23):1738-1740; doi:10.1093/jnci/96.23.1738
© 2004 by Oxford University Press
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© 2004 Oxford University Press

NEWS

Privacy Regulations Have Mixed Impact on Cancer Research Community

Charles Bankhead

The first 10% of the full text of this article appears below.

Almost 2 years after new federal regulations pertaining to the privacy of health care information went into effect, cancer researchers continue to cite a heavy paperwork burden and pervasive uncertainty regarding the regulatory requirements as potential impediments to cancer research.

After gearing up to meet the privacy requirements of the Health Insurance Portability and Accountability Act (HIPAA), institutions say that conventional clinical trials generally have continued in a business-as-usual manner. However, uncertainty continues to swirl around other types of research, including studies involving stored specimens, gene array analysis, epidemiologic investigations, and behavioral studies. Additional uncertainty surrounds sharing of information among institutions.

"I think everyone agrees that privacy of patient information is a good thing," said James Armitage, M.D., the Joe Shapiro Professor of Medicine at the University of Nebraska Medical Center in Omaha. "However, an unanticipated side effect of the privacy rules has been the impact . . . [Full Text of this Article]


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