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JNCI Journal of the National Cancer Institute 2001 93(4):257-259; doi:10.1093/jnci/93.4.257
© 2001 by Oxford University Press
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Journal of the National Cancer Institute, Vol. 93, No. 4, 257-259, February 21, 2001
© 2001 Oxford University Press

NEWS

Cancer Advocacy Evolves as It Gains Seats on Research Panels

Caroline McNeil

In the early 1990s, breast cancer advocates like Deborah Collyar spent much of their time demanding attention. "We made a lot of noise," said Collyar, who is now president of Patient Advocates in Research, a national organization based in San Francisco. As one of the first cancer advocates, Collyar was also persistent. She called investigators, wrote letters, demanded audiences, attended meetings, and stood in line at the microphone when speakers invited questions.



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  		Deborah Collyar

 
What she and other activists were after was not just more funds for breast cancer research. They also wanted a voice in how those funds were spent: "We wanted to participate in the research dialogue," she said in a recent interview.

By the end of the decade, the advocacy movement had made definite progress in that direction. Advocates have won new seats on research planning . . . [Full Text of this Article]

Defining Roles

Orientation and Training


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